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421 - 430 of 7311 Topics
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Publication
Summary of the experiences, knowledge, medical management, and family communication of monoallelic MUTYH carriers
Journal of Genetic Counseling -
Grant Abstract
Genetic Privacy and Identity in Community Settings - GetPreCiSe
Concerns about privacy and personal identity impede use of data about genomic variation, phenotypes, demographics, and exposures from large numbers of people to uncover the contributions of such…- Attitude
- Automobile Driving
- base
- Belief
- Benefits and Risks
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Grant Abstract
Informed Consent and Data Access Issues in State-based Biobanks
The ethical, legal, and social issues (ELSI) underlying the development and implementation of state-sponsored birth cohort studies and their accompanying biobanks are complex and potentially volatile…- Adult
- Affect
- Anxiety
- Area
- Attitude
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Publication
Banking biological collections: Data warehousing, data mining, and data dilemmas in genomics and global health policy
Community GeneticsDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Research Tool
Sharing Power with Communities in Priority-Setting for Health Research Projects: A Toolkit
Pratt developed Sharing Power with Communities in Priority-Setting for Health Research Projects (a set of four worksheets and a companion document available in this database), following consultation… -
Publication
Germany may relax genome data policy
ScienceDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
The new EU–US data protection framework’s implications for healthcare
Journal of Law and the Biosciences