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Publication
Informed consent in international health research
Journal of Empirical Research on Human-Research Ethics -
Publication
Promoting responsible research and innovation (RRI) during Brazilian activities of genomic and epidemiological surveillance of arboviruses
Frontiers in Public Health -
Publication
Technological platforms and the layers of patent data
University of Chicago PressDuke University Center for Public Genomics. Grant number(s): P50HG003391 -
Grant Abstract
Family Disclosure of Cancer Risk: An Ethnographic Study
There is almost no systematic, empirical research on the topic of how information about genetic risk information travels through families, what family and cultural characteristics might impede or…- behavioral /social science research tag
- breast neoplasms
- cancer risk
- culture
- data collection methodology /evaluation
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Grant Abstract
Minors At-Risk of Future Disease: Their Role in Research
This study will explore the process by which families at increased risk of adult-onset disease decide to involve their children in research on genetic susceptibility. Through interviews with parents…- adolescence (12-20)
- African American
- age difference
- breast neoplasms
- caucasian American
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Publication
Understanding and perception of direct‐to‐consumer genetic testing in Hong Kong
Journal of Genetic Counseling -
Grant Abstract
Genetics and genomic research in Uganda: Towards context specific ethics guidelines
The overall goal of this proposed project is to systematically develop culturally appropriate model ethics guidelines for conducting genetics and genomics research (GGR) in Uganda. This goal will be…- Africa
- Africa South of the Sahara
- authority
- Awareness
- Bioethics