Image
The topics page enables quick access to all resource types on
the platform, organized by relevance to your topic.
Popular Searches
Featured Topics
Featured Topics
431 - 440 of 1211 Topics
-
Grant Abstract
Ethnicity, Citizenship, Family: Identity after the HGP
This project will bring together an interdisciplinary working group of scholars to explore these questions. During a three year period, it will meet to develop the language, criteria, and conceptual…- behavioral /social science research tag
- community
- culture
- Ethnic group
- family structure /dynamics
-
Grant Abstract
Outcomes of Cx26 Testing in Deaf/Hard of Hearing Adults
Genetic testing for deafness is now a reality with the identification of Connexin 26 (Cx26, GJB2) as a cause of up to 50% of nonsyndromic sensorineural deafness. Because deafness is viewed as a…- 18 year old
- Address
- Adult
- Affect
- Anxiety
-
Publication
It's all in the timing: Calibrating temporal penalties for biomedical data sharing
Journal of the American Medical Informatics AssociationThe Center for Genetic Privacy and Identity in Community Settings (GetPreCiSe). Grant number(s): RM1HG009028 -
Publication
Pathways across the valley of death: Novel intellectual property strategies for accelerated drug discovery
Cambridge University PressDuke University Center for Public Genomics. Grant number(s): P50HG003391 -
Publication
A game theoretic approach to balance privacy risks and familial benefits
Scientific ReportsGuo and colleagues use a game theoretic approach to model how consumers of third-party interpretation (TPI) services may act as they weigh the benefits of sharing their genetic data against the… -
-
Video
ELSIcon2022 Late-Breaking: Is a gene running in your family? Perceptions of responsibility to inform relatives about genetic cancer predisposition and risk management: an in-depth qualitative Swiss-Korean comparative analysis
ELSIcon2022 • Networking Session • Late-breaking Abstracts • May 31, 2022 Monica Aceti This study examines the different meanings of responsibility to disclose to family about genetic…- Live
- Networking Session
- Late-breaking Abstracts
- Disclosure of genetic risk information to relatives
- Genetic Counseling
-
-
Publication
Families of children with Down syndrome: What we know and what we need to know
Downs Syndr Res Pract -
Publication
Family secrets: Experiences and outcomes of participating in direct-to-consumer genetic relative-finder services
American Journal of Human GeneticsGuerrini and colleagues surveyed 23,196 genetic relative-finder (GRF) service participants and found that discoveries of genetic relatives are common. Most respondents reported that the discoveries…