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Grant Abstract
Genetic Research and the Navajo Nation: Context of and Attitudes to the Moratorium
The Navajo Nation placed a moratorium on genetic research studies in 2002, yet the tribe has high rates of genetic diseases and disorders. Historical distrust, fears of exploitation, and limited…- Attitude
- biomedical scientist
- Communities
- Community Consents
- Disease
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Publication
Ethnic differences in risk perception among women at increased risk for breast cancer
Breast Cancer Res Treat. -
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Grant Abstract
Ethics of Identifying Race in the New Genetics
This ethnographic study examines the social and ethical implications of the use of categories of race and ethnicity in human genome research. The specific goals of the proposed research are: 1) to…- biotechnology
- culture
- Ethics
- Genetic Polymorphism
- Genetic Screening
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Publication
Sociocultural influences on participation in genetic risk assessment and testing among African American women
Patient Education and Counseling -
Grant Abstract
Family Disclosure of Cancer Risk: An Ethnographic Study
There is almost no systematic, empirical research on the topic of how information about genetic risk information travels through families, what family and cultural characteristics might impede or…- behavioral /social science research tag
- breast neoplasms
- cancer risk
- culture
- data collection methodology /evaluation
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Publication
Promoting responsible research and innovation (RRI) during Brazilian activities of genomic and epidemiological surveillance of arboviruses
Frontiers in Public Health -
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Publication
From 'Frankenstein science' to cosmopolitan ethics: Overlooked perspectives on the 'CRISPR babies' scandal
CRISPR Journal -
Grant Abstract
Minors At-Risk of Future Disease: Their Role in Research
This study will explore the process by which families at increased risk of adult-onset disease decide to involve their children in research on genetic susceptibility. Through interviews with parents…- adolescence (12-20)
- African American
- age difference
- breast neoplasms
- caucasian American