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Publication
Returning personalized, genetic health test results to individuals of African descent or ancestry in precision medicine research
Health Affairs Scholar -
News
EFF Resources - The ELSI of Social Epigenetics
Session Title: The ELSI of Social Epigenetics Date and time: Friday, May 9, 2025 | 12pm ET US / 9am PT US Moderator: Martine Lappé, PhD Presenters: Michael S. Kobor, PhD & Erika A.… -
Additional Resource
Delaware State Statute (Delaware: Del. Code 18 §§3571M, 3572, 3602, 3611, and 7202)
A health status-related factor is defined to include genetic information with respect to large group health plans, individual health plans and small employer health insurance. Group health insurers…- health insurance
- nondiscrimination
- Discrimination
- Delaware
- state statute
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Grant Abstract
Genetic Information and Life Insurance Underwriting
The proposed research will study whether there should be any limits placed on life insurers' use of predictive genetic information in risk classification or medical underwriting. The research…- behavioral /social science research tag
- Data Collection
- Ethics
- Gene Expression
- genetic carriers
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Publication
Support seeking or familial obligation: An investigation of motives for disclosing genetic test results
Health Commun -
Video
ELSIcon2022 Paper: Physician Perspectives on Polygenic Risk Scores
ELSIcon2022 • Paper • May 27, 2022 Stephanie M. Fullerton, David R. Crosslin, Gail P. Jarvik, Susan Trinidad Polygenic risk scores (PRS) use dozens to millions of genotypes, each usually…- Screening for polygenic conditions and risk scores
- Public Health
- Paper
- Pre-Recorded
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Video
ELSIcon2022 Paper: Cystic Fibrosis Communities: Shifting Sites of Prognostic Imagination
ELSIcon2022 • Paper • May 27, 2022 Rebecca Mueller Long before COVID-19 made social distancing normal, people with cystic fibrosis already practiced such behaviors. Between the 1980s and the…- Lived experience of genetic conditions
- Race, disability, and gender studies
- Paper
- Pre-Recorded
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Publication
National survey of genetics content in basic nursing preparatory programs in the United States
Nursing Outlook -
Publication
Ethical challenges in study design and informed consent for health research in resource-poor settings
World Health Organization -
Additional Resource
Minnesota 2013 State Bills (Minnesota 2013 SF 1234/HF 1359)
Medical data collected, stored, used, or disseminated by or filed with the commissioner in connection with a claim for workers' compensation benefits does not constitute genetic information for…- state bill
- bill
- bill status enacted
- Minnesota