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  • Grant Abstract

    eMERGE Consent and Community Consultation Working Group

    Myocardial infarction (Ml) and peripheral arterial disease (PAD) pose an enormous public health burden and there is an urgent need to develop new strategies for their prevention and treatment. Both…
  • Grant Abstract

    Attitudes Regarding Prenatal and Preimplantation Genetic Diagnosis For Inherited

    A significant proportion of patients who pursue testing for BRCA gene alterations are of reproductive age. Many are actively engaged in decisions about family planning or will be in the future. A…
  • Grant Abstract

    The Ethics of Post-Conflict and Post-Disaster DNA Identification

    Forensic DNA profiling is increasingly becoming a standard tool in the search for missing people in the aftermath of mass violence and mass disaster. Yet, there has been very little systematic effort…
  • Grant Abstract

    Developing and Evaluating Patient Centered Tools for Clinical Classification of Variants of Uncertain Significance

    Targeted gene sequencing using large panels has become an increasingly important strategy for evaluating disease risk for many inherited diseases. Expanded gene panels are more sensitive than single…
  • Publication

    Who owns our genes?: Proceedings of an international conference

    Nordic Council of Ministers
    Nordic Council of Ministers
    Digital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National…
  • Publication

    Ethical issues in human stem cell research. Volume II: Commissioned papers

    The Commission
    National Bioethics Advisory Commission
    Digital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National…
  • Publication

    Genetic information: Acquisition, access, and control

    Kluwer Academic Publishers
    Thompson, Alison K., Chadwick, Ruth F.
    Digital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National…
  • Publication

    Asian bioethics in the 21st century

    Eubios Ethics Institute
    Sang-yong, Song, Young-Mo, Koo, Macer, Darryl R.J.
    Digital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National…