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Consensus Study Report, Biodefense in the Age of Synthetic Biology, the National Academies of Sciences, Engineering, and Medicine (NASEM) (2018)
This National Academies Press publication documents the evidence-based consensus of a committee of experts on U.S. national security concerns related to advances in synthetic biology. It outlines the…- NASEM
- ELSI
- report
- consensus study
- workshop proceeding
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Publication
Protecting participants in genomic research: Understanding the ‘Web of Protections’ afforded by federal and state law
Journal of Law, Medicine & Ethics -
Additional Resource
Louisiana State Statute (Louisiana: LRS 23:302, 23:352 and 23:368; LRS 51:2231 et seq.)
An employer, labor organization, or employment agency may not (1) discriminate against any employee based on genetic information, (2) require, collect, purchase, or disclose genetic information or…- state statute
- Louisiana
- employment nondiscrimination
- Genetic Services
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Additional Resource
Oregon State Statute (Oregon: ORS §§659A.300 and 659A.303 )
It is an unlawful employment practice for an employer to seek to obtain, to obtain or to use genetic information of an employee or a prospective employee or their blood relatives to distinguish…- state statute
- Oregon
- employment nondiscrimination
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Publication
Rethinking the burden of traditional informed consent prior to prenatal genetic screening
Hastings Center Report -
Publication
Distributive justice, diversity, and inclusion in precision medicine: What will success look like?
Genet MedClinical Sequencing Evidence-Generating Research (CSER) Consortium. -
Publication
A qualitative study of unaffected ATM and CHEK2 carriers: How participants make meaning of ‘moderate risk’ genetic results in a population breast cancer screening trial
Journal of Genetic Counseling -
Publication
A place for genetic uncertainty: Parents valuing an unknown in the meaning of disease
Social Science & Medicine