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Publication
Ethical considerations related to return of results from genomic medicine projects: The eMERGE network (phase III) experience
Journal of Personalized Medicine -
Additional Resource
Massachusetts 2017 State Bills (Massachusetts 2017 H1985)
Adds biometric indicators to the state data security protection law. Biometric indicator is defined as any unique biological attribute or measurement that can be used to authenticate the identity of…- state bill
- bill
- bill status died
- Massachusetts
- genetic privacy
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Additional Resource
Iowa 2010 State Bills (Iowa 2010 SF 2068)
This bill prohibits health insurers from discriminating based on genetic information or tests. Authorization is required to obtain genetic information or samples. Consent requirements are established…- state bill
- bill
- bill status died
- Iowa
- health insurance nondiscrimination
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Additional Resource
The Responsible Conduct of Research in the Health Sciences, the National Academies of Sciences, Engineering, and Medicine (NASEM) (1989)
This National Academies Press publication reports the results of a study of ways to improve the integrity and quality of biomedical research. It includes the findings, conclusions, and…- NASEM
- ELSI
- report
- consensus study
- workshop proceeding
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Grant Abstract
The ELSI of Genetic Testing in the Workplace
The objective of this proposal is to begin to anticipate, analyze and address the ethical, legal and social implications of the use of new genetic information and technologies in a critical non-…- Clinical Research
- Ethics
- Focus Groups
- Genetic Screening
- health related legal
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Grant Abstract
An Experimental Study to Improve Risk/Benefit Appraisal
The specific aims of this research are to develop, implement, and assess the effectiveness of a decision balance risk-benefit component as part of the informed consent process for women deciding to…- African American
- behavioral /social science research tag
- blood disorder diagnosis
- caucasian American
- Decision Making
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Grant Abstract
Negotiating Complexity: Common Disease & Diverse Genomes
With the recent 'completion' of the human genome sequence, geneticists have turned their attention to a detailed consideration of variation, both as it occurs in the genome and as it…- Belief
- Clinical Research
- genetic disorder
- Genetic Polymorphism
- Genome
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Additional Resource
Consensus Study Report, A New Biology for the 21st Century, the National Academies of Sciences, Engineering, and Medicine (NASEM) (2009)
This National Academies Press publication documents the evidence-based consensus of a committee of experts on the integration of disciplines to create a biological research community capable of…- NASEM
- ELSI
- report
- consensus study
- workshop proceeding
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