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Video
ELSIcon2022 Paper: Informational Disparities in Electronic Health Records: Implications for Delivery of Hereditary Cancer Genetic Services
ELSIcon2022 • Paper • May 27, 2022 Daniel Chavez-Yenter, Xiangying Chu, Yuyu Chen, Melody S. Goodman, Kimberly Kaphingst Health system-wide approaches are needed to identify patients eligible for…- Data and data stewardship
- Public Health
- Paper
- Pre-Recorded
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Publication
A world of difference: The fundamental opposition between transhumanist “welfarism” and disability advocacy
BioethicsLevin critiques the "welfarist account" of disability, which issues a moral mandate to prospective parents to maximize the capacities (e.g., cognitive ability) of their future children through… -
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Publication
Returning pharmacogenetic secondary findings from genome sequencing: Let's not put the cart before the horse
Genet MedClinical Sequencing Evidence-Generating Research (CSER) Consortium. -
Publication
The role of law in the debate over return of research results and incidental findings: The challenge of developing law for translational science
Minn J Law Sci TechnolClinical Sequencing Evidence-Generating Research (CSER) Consortium. Grant number(s): R01-HG003178, R01-CA154517 -
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Video
ELSIcon2022 Paper: Family Secrets Revealed: Experiences and impacts of participating in direct-to-consumer genetic relative-finder services
ELSIcon2022 • Paper • May 27, 2022 Christi Guerrini, Jill Robinson, Cinnamon Bloss, Whitney Bash Brooks, Stephanie M. Fullerton, Brianne Kirkpatrick, Sandra Soo-Jin Lee, Mary Majumder, Stacey…- Relative finding/matching
- Genetic testing and screening
- Paper
- Pre-Recorded
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Video
ELSIcon2022 Late-Breaking: Impact of a direct-to-consumer (DTC) report on Alpha-1 antitrypsin deficiency (AATD) risk on clinical diagnosis of disease and on self-reported behaviors
ELSIcon2022 • Networking Session • Late-breaking Abstracts • June 2, 2022 Sarah Elson Background: Alpha-1 antitrypsin deficiency (AATD) is an autosomal co-dominant condition that predisposes…- Live
- Networking Session
- Late-breaking Abstracts
- precision medicine
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Video
CRISPR and Human Identity: Governing Germline Gene Editing
International uproar followed the announcement in late 2018 of the birth of twin girls whose genomes had been edited with CRISPR genome editing technology. Critics pointed not only to the health…- CRISPR
- Personal Identity
- Gene Editing
- Governance of emerging genomic technologies
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Additional Resource
New York State Statute (New York: NYCL (CVS) §115 )
Declares that it is the policy of the state and all its political subdivisions to ensure a fair, non-biased compensation structure for all employees. Status within one or more protected class or…- state statute
- New York
- employment nondiscrimination