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Sharing Power with Communities in Priority-Setting for Health Research Projects: Ethical Toolkit Worksheet 2
Pratt developed Sharing Power with Communities in Priority-Setting for Health Research Projects (a set of four worksheets and a companion document available in this database), following consultation… -
Publication
A view on genomic medicine activities in Africa: Implications for policy
Frontiers in Genetics -
Publication
Racial meanings and scientific methods: Changing policies for NIH-sponsored publications reporting human variation
Journal of Health Politics, Policy and LawDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Genetic data partnerships: Academic publications with privately owned or generated genetic data
Genetics in Medicine -
News
ELSI Abroad: Spotlight on Singapore
CERA is pleased to share a set of interviews that aim to foster a global perspective on the ELSI field of study and inspire information sharing and collaboration across national borders. So far, we… -
Publication
CanDIG: Federated network across Canada for multi-omic and health data discovery and analysis
Cell Genomics -
Publication
Demographic differences in willingness to share electronic health records in the All of Us Research Program
Journal of the American Medical Informatics Association -
Publication
Publication rights in the era of open data release policies
ScienceDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Identifiability of DNA data: The need for consistent federal policy
American Journal of BioethicsDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Evidence to inform biopharmaceutical policy: Call for research on the impact of public policies on investment in drug development
Health Affairs Scholar