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Publication
Polygenic risk scores in the clinic: A systematic review of stakeholders' perspectives, attitudes, and experiences
European Journal of Human Genetics -
Publication
Communication about hereditary cancer risk to offspring: A systematic review of children's perspective
Psycho-Oncology -
Publication
Public perspectives on healthcare professional-directed communication of hereditary genetic risks: A mixed-method systematic review
European Journal of Human Genetics -
Publication
A systematic literature review of Native American and Pacific Islanders’ perspectives on health data privacy in the United States
Journal of the American Medical Informatics Association -
Publication
CRISPR gene-therapy: A critical review of ethical concerns and a proposal for public decision-making
Canadian Journal of Bioethics -
Publication
NIH pulls plug on ethics review
ScienceDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Video
The ELSI of Engagement: Benefits and Challenges to Achieving a Just Genomics
ELSIcon2024 • Panel • June 12, 2024 Authors: Corresponding Author: Meghan Halley, PhD, MPH - Stanford Center for Biomedical Ethics Panelist: Ryan Fischer - Foundation for Angelman…- ELSIcon2024
- 6th ELSI Congress
- Community Engagement
- equity and justice in genetics
- Public Health
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Publication
Psychosocial interventions and needs among individuals and families with Li-Fraumeni syndrome: A scoping review
Clinical Genetics -
Collection
Ethical, Legal, and Social Implications (ELSI) of DNA-based Technologies for Disaster Victim Identification (DVI)
As we mark the 20th anniversary of the attacks on the World Trade Center and Washington, D.C. that occurred on September 11, 2001, we reflect on the pain and loss of the events that shook the entire…- DNA-based technology
- Disaster victim identification (DVI)
- Identity sciences
- DNA identification
- natural disaster