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Workshop Proceedings, Relevance of Health Literacy to Precision Medicine, the National Academies of Sciences, Engineering, and Medicine (NASEM) (2016)
This National Academies Press publication summarizes the proceedings of a 1-day public workshop on health literacy and precision medicine. The workshop was convened by the Roundtable on Health…- NASEM
- ELSI
- report
- consensus study
- workshop proceeding
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Publication
Exome sequencing disclosures in pediatric cancer care: Patterns of communication among oncologists, genetic counselors, and parents
Patient Educ CounsClinical Sequencing Evidence-Generating Research (CSER) Consortium. Grant number(s): U01HG006485 -
Publication
Impact of gene patents and licensing practices on access to genetic testing for cystic fibrosis. Peer-reviewed case study commissioned by the SACGHS
Genetics in MedicineDuke University Center for Public Genomics. Grant number(s): P50HG003391 -
Publication
Impact of gene patents and licensing practices on access to genetic testing for cystic fibrosis
Genet MedDuke University Center for Public Genomics. Grant number(s): P50HG003391 -
Additional Resource
Consensus Study Report, Learning Through Citizen Science, Enhancing Opportunities by Design, the National Academies of Sciences, Engineering, and Medicine (NASEM) (2018)
This National Academies Press publication documents the evidence-based consensus of a committee of experts on factors that influence the integrity of the research process following a 2-year study. It…- NASEM
- ELSI
- report
- consensus study
- workshop proceeding
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Publication
Universities: The fallen angels of Bayh-Dole?
DaedalusDuke University Center for Public Genomics. Grant number(s): P50HG003391