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Publication
The egg-sharing model for human therapeutic cloning research: Managing donor selection criteria, the proportion of shared oocytes allocated to research, and amount of financial subsidy given to the donor
Medical HypothesesDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Exchange of human data across international boundaries
Annual Review of Biomedical Data Science -
Publication
Barriers to clinical adoption of next generation sequencing: Perspectives of a policy Delphi panel
Applied & Translational GenomicsDuke University Center for Public Genomics. Grant number(s): P50HG003391 -
Grant Abstract
Managing Incidental Findings and Research Results in Genomic Biobanks and Archive
This 2-year project tackles a profoundly important but widely ignored problem: how should researchers handle incidental findings that have potential clinical significance, what should consent forms…- behavioral /social science research tag
- Clinical Research
- confidentiality
- endoscopy
- Ethics
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Grant Abstract
Genetics of Nicotine Addiction-Examining Ethics & Policy
This project will combine empirical investigation with ethical and policy analysis, employing a range of methods: systematic review of the scientific literature and of tobacco industry documents,…- behavioral /social science research tag
- Behavioral Genetics
- bias
- Clinical Research
- data collection methodology /evaluation
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Grant Abstract
Innovative Approaches to Returning Results in Exome and Genome Sequencing Studies
Exome sequencing and whole genome sequencing (ES/WGS) are rapidly emerging as important tools in human genetics research. Unlike conventional approaches, ES/WGS can putatively identify all functional…- adjudicate
- Adult
- Alleles
- base
- Benefits and Risks
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Job Posting
Director, Ethics Policy
The American Medical Association (AMA) is the nation's largest professional Association of physicians and a non-profit organization. We are a unifying voice and powerful ally for America's physicians…- Public Health
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Research Tool
Sharing Power with Communities in Priority-Setting for Health Research Projects: Ethical Toolkit Worksheet 4a
Pratt developed Sharing Power with Communities in Priority-Setting for Health Research Projects (a set of four worksheets and a companion document available in this database), following consultation… -
Research Tool
Sharing Power with Communities in Priority-Setting for Health Research Projects: Ethical Toolkit Worksheet 4b
Pratt developed Sharing Power with Communities in Priority-Setting for Health Research Projects (a set of four worksheets and a companion document available in this database), following consultation…