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4751 - 4760 of 7314 Topics
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Publication
Incorporating user feedback in the design of a genetics analysis tool: A two-part approach
Journal of Biomedical Informatics -
Publication
Analyzing the heterogeneity and complexity of Electronic Health Record oriented phenotyping algorithms
AMIA Annu Symp Proc -
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Additional Resource
Consensus Study Report, Returning Individual Research Results to Participants: Guidance for a New Research Paradigm, the National Academies of Sciences, Engineering, and Medicine (NASEM) (2018)
This report published by the National Academies Press explores the benefits, harms, and costs of returning individual research results as well as the ethical, social, and regulatory aspects of this…- NASEM
- ELSI
- report
- consensus study
- workshop proceeding
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Additional Resource
Workshop Proceedings, Strategies for Engagement of Non-Traditional Partners in the Research Enterprise, the National Academies of Sciences, Engineering, and Medicine (NASEM) (2018)
This National Academies Press publication summarizes the proceedings of a workshop that explored issues associated with partnerships between government, university, and industry in the U.S. research…- NASEM
- ELSI
- report
- consensus study
- workshop proceeding
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Additional Resource
Hawaii State Statute (Hawaii: HRS §§431:10A-118, 431:10A-404.5, 432:1-607, 432:2-404.5, and 432D-26 )
No insurer providing accident and health or sickness insurance coverage or extended health insurance coverage, mutual benefit society, fraternal benefit society, or health maintenance organization…- state statute
- Hawaii
- insurance nondiscrimination
- insurance coverage
- written consent
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Publication
Targeting representation: Interpreting calls for diversity in precision medicine research
Yale Journal of Biology and Medicine -
Publication
Is there a way to reduce the inequity in variant interpretation on the basis of ancestry?
American Journal of Human Genetics -
Publication
Shifting to a model of donor conception that entails a communication agreement among the parents, donor, and offspring
BMC Medical Ethics -
Grant Abstract
Increasing confidence and changing behaviors in primary care providers
Primary care physicians have almost no training in genetics, nor in the ethical, legal and social implications (ELSI) of genetic testing, diagnosis and therapy. Further, mere provision of curricular…- Advertisements
- Affect
- arm
- Attitude
- base