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Grant Abstract
Organizing the HGI: Social Impact and Technology Design
This sociological study is a prospective field research project on the development of the human genome initiative during the first half of the 1990's. The study is examining how the genomics…- comprehensive medical planning
- Decision Making
- Ethics
- Genome
- health /scientific organization
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Grant Abstract
Information and the Transformation of Molecular Biology
How did scientists come to view organisms and molecules as information storage and retrieval systems? By which processes did life come to be conceptualized as a text written in a natural language? By…- biochemical evolution
- biological information processing
- Books
- DNA
- Genetics
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Publication
Homo economicus commercialization of body tissue in the age of biotechnology
The Hastings Center Report -
Video
ELSIcon2024: Proper Parents: Poverty, Disability, Race, and Reproductive Control after the Eugenics Era
ELSIcon2024 • Panel • June 10, 2024 Authors: Corresponding Author: Natalie Lira Panelist: Jim Tabery, PhD – University of Utah Panelist: Marie Kaniecki, MPH (she/her/hers) –…- ELSIcon2024
- 6th ELSI Congress
- disability
- equity and justice in genetics
- reproductive genetics
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Video
ELSIcon2022 Paper: Navigating community engagement in clinical trial research
ELSIcon2022 • Paper • June 1, 2022 Mikaella Caruncho, Jennifer James, Galen Joseph In recent years, community engagement approaches to genomic research have grown in popularity, motivated by…- Live
- Paper
- Recruiting diverse participants to precision medicine research
- genomics research
- Biobanks
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Video
Racial and Ethnic Classification in the Clinic: Is it Just?
Natalie Pino, BA - National Human Genome Research Institute ELSIconversations - March 26, 2021 The United States has a long history of institutionally classifying people by racial and ethnic (R/E)…- racial /ethnic difference
- race and genetics
- clinical challenges
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Grant Abstract
Consent in Genetic Research: An International Trial
As the scientific study of genetic variation between human groups gains momentum around the world, traditional questions of research ethics are being transformed in ways that challenge our…- African
- African American
- behavioral /social science research tag
- breast neoplasms
- Clinical Research