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Publication
The emergence of commercial genomics: Analysis of the rise of a biotechnology subsector during the Human Genome Project, 1990-2004
Genome MedicineDuke University Center for Public Genomics. Grant number(s): P50HG003391 -
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Video
October 2024 ELSI Friday Forum: The Summer internship for INdigenous peoples in Genomics – Beyond Settler Science
Scientists from dominant genomic institutions are beginning to recognize the ways in which they have been and continue to be non-inclusive and harmful to marginalized communities, especially to…- Indigenous genomics
- marginalized groups
- genomic science
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Grant Abstract
Training Program for Psychiatric Genetics in India
Psychiatric disorders are common and significant sources of morbidity in developing as well as developed countries, yet their etiology is unknown. Like several common human diseases, certain severe…- behavioral /social science research tag
- Behavioral Genetics
- Clinical Research
- Ethics
- family genetics
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Publication
Genome sequencing—Do you know what you are getting into?
European Journal of Human Genetics -
Additional Resource
North Dakota 2015 State Bills (North Dakota 2015 SB 2334)
This bill amends provisions in the state newborn screening law pertaining to the use of residual dried blood spots for research. The bill states that a person conducting research on blood spots,…- state bill
- bill
- bill status enacted
- North Dakota
- genetic privacy
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Additional Resource
Consensus Study Report, Future Uses of the Department of Defense Joint Pathology Center Biorepository, the National Academies of Sciences, Engineering, and Medicine (NASEM) (2012)
This National Academies Press publication documents a series of protocols, standards, safeguards, and guidelines proposed by the Institute of Medicine that are designed to maintain both donor privacy…- NASEM
- ELSI
- report
- consensus study
- workshop proceeding
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Publication
Re-identification of individuals in genomic datasets using public face images
Science AdvancesThe Center for Genetic Privacy and Identity in Community Settings (GetPreCiSe). Grant number(s): RM1HG009003 -
Additional Resource
Workshop Proceedings, Exploring Novel Clinical Trial Designs for Gene-Based Therapies, the National Academies of Sciences, Engineering, and Medicine (NASEM) (2019)
This National Academies Press publication summarizes the proceedings of workshop on ethical issues in clinical trials for gene therapies. This workshop was convened by the Forum on Regenerative…- NASEM
- ELSI
- report
- consensus study
- workshop proceeding