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ELSI in Review • December 2023
About this listing ELSI in Review is a listing of recently published reviews of the literature on key ELSI topics curated by CERA staff. Our December 2023 set explores public perceptions of AI in… -
Grant Abstract
Sharing Qualitative Research Data: Identifying and Addressing Ethical and Practical Barriers
This project will identify and address ethical and practical barriers to qualitative data sharing (QDS) in health sciences research. Qualitative research has unique value in understanding health…- Algorithms
- Attitude
- base
- Bioinformatics
- Case Study
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Publication
The Bermuda Triangle: The pragmatics, policies, and principles for data sharing in the history of the Human Genome Project
J Hist BiolDuke University Center for Public Genomics. Grant number(s): P50HG003391 -
Grant Abstract
A Risk Management Framework for Identifiability in Genomics Research
When the Human Genome Project was completed almost ten years ago it cost millions of dollars to sequence an individual's genome. Yet, the evolution of high-throughput sequencing and…- Academic Medical Centers
- Address
- Adopted
- Agreement
- Back
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Grant Abstract
Genetic data partnerships: Enabling equitable access within academic/private data sharing agreements
PROJECT NARRATIVE ?Precision medicine? and other advances in genetic research require access to massive amounts of genetic and related health data, but private genetic datasets are growing rapidly in…- Agreement
- Automobile Driving
- base
- career
- career development
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Publication
Policy options to facilitate cancer genomic variant data sharing: Outcomes of a modified policy Delphi
Journal of Law and the Biosciences -
Publication
Data management of sensitive human proteomics data: Current practices, recommendations and perspectives for the future
Molecular & Cellular Proteomics -
Publication
Researcher knowledge, attitudes, and communication practices for genomic data sharing
Journal of Empirical Research on Human Research Ethics