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5031 - 5040 of 7317 Topics
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Publication
Regulatory changes raise troubling questions for genomic testing
Genet MedClinical Sequencing Evidence-Generating Research (CSER) Consortium. Grant number(s): U01 HG006507, U01 HG007307 -
Publication
Eyes wide open: The personal genome project, citizen science and veracity in informed consent
Per MedDuke University Center for Public Genomics. Grant number(s): P50HG003391 -
Additional Resource
Workshop Proceedings, The Learning Healthcare System, the National Academies of Sciences, Engineering, and Medicine (NASEM) (2007)
This National Academies Press publication summarizes the proceedings of a workshop that explored issues associated with the creation of a sustainable learning health care system. The workshop was…- NASEM
- ELSI
- report
- consensus study
- workshop proceeding
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Additional Resource
Joint Position Statement, The Use of Genome‐wide Sequencing for Fetal Diagnosis, International Society for Prenatal Diagnosis (ISPD), the Society for Maternal Fetal Medicine (SMFM), and the Perinatal Quality Foundation (PQF)
This Joint Position Statement from the International Society for Prenatal Diagnosis (ISPD), the Society for Maternal Fetal Medicine (SMFM), and the Perinatal Quality Foundation (PQF) includes a…- position statement
- International Society for Prenatal Diagnosis
- ISPD
- Society for Maternal Fetal Medicine
- SMFM
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Publication
Looking back: Three key lessons from 20 years of shaping Japanese genome research regulations
Journal of Human Genetics -
Publication
Regulatory landscape and public perception for gene-edited bananas in the Southeast Asian region
Transgenic Research -
Publication
Raising genomic citizens: Adolescents and the return of secondary genomic findings
J Law Med EthicsClinical Sequencing Evidence-Generating Research (CSER) Consortium -
Publication
Challenges and recommendations to increasing the use of exome sequencing and whole genome sequencing for diagnosing rare diseases in Brazil: An expert perspective
International Journal for Equity in Health