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Video
ELSIcon2022 Flash: Participant understandings of biobanking and future genomic research: experiences from a multi-disease community-based health screening and biobank platform in rural South Africa
ELSIcon2022 • Flash • May 27, 2022 Manono Luthuli, Nothando Ngwenya, Dumsani Gumede, Resign Gunda, Dickman Gareta, Olivier Koole, Mark J. Siedner, Emily B. Wong, Janet Seeley Background: Limited…- Motivation to participate in research
- equity and justice in genetics
- Flash
- Pre-Recorded
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Video
ELSIcon2022 Flash: Socioeconomic Status and Interest in Pursuing Genetic Testing for Hereditary Cancer in a US Based Population
ELSIcon2022 • Flash • June 3, 2022 Presented by: EJ Dusic Deborah J. Bowen, Robin Bennett, Tesia Theoryn, Kevin C. Cain, Elizabeth Swisher, Jeannine Brant, Brian Shirts, Catharine Wang…- Live
- Flash
- Uptake of genetic testing
- Genetic testing and screening
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Video
ELSIcon2022 Paper: Is Non-invasive Prenatal Testing Really Invasive? Examining Black Women’s Perceptions of Non-Invasive Prenatal Testing for Sickle Cell Disease
ELSIcon2022 • Paper • June 3, 2022 Presented by: Shameka Poetry Thomas Non-invasive prenatal testing (NIPT) has become standard prenatal care in the United States and is currently being…- Live
- Paper
- Uptake of genetic testing
- reproductive genetics
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Grant Abstract
Engaging African Communities for the HapMap Project
The Haplotype Map (HapMap) Project is an international collaborative project to produce a haplotype map of the human genome. The HapMap is expected to be a key resource for more efficient genome-wide…- African
- biotechnology
- Clinical Research
- community health services
- culture
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Additional Resource
Consensus Study Report, Final Report of the National Academies' Human Embryonic Stem Cell Research Advisory Committee and 2010 Amendments to the National Academies' Guidelines for Human Embryonic Stem Cell Research (2010)
This National Academies Press publication updates the 2005 report titled Guidelines for Human Embryonic Stem Cell Research and amended reports of 2007 and 2008. This revision to the set of ethical…- NASEM
- ELSI
- report
- consensus study
- workshop proceeding
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Publication
Defining ethical criteria to guide the expanded use of Noninvasive Prenatal Screening (NIPS): Lessons about severity from preimplantation genetic testing
European Journal of Human Genetics -
Publication
Defining need amid exponential change: Conceptual challenges in workforce planning for clinical genetic services
Clinical Therapeutics -
Publication
A systematic review of genetic literacy interventions in secondary schools
AIP Conference Proceedings -
Publication
Economic surplus implications of Mexico's decision to phaseout genetically modified maize imports
GM Crops & Food