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Publication
Hoping someday never comes: Deferring ethical thinking about noninvasive prenatal testing
AJOB Empirical Bioethics -
Publication
Comment on informing relatives of their genetic risk: An examination of the Belgian context
European Journal of Human Genetics -
Publication
Learning from the past: Discussing lessons from reproductive justice in the gene-editing sphere
Genetic Testing and Molecular Biomarkers -
Publication
Attitudes toward population screening among people living with fragile X syndrome in the UK: 'I wouldn't wish him away, I'd just wish his fragile X syndrome away'
Journal of Genetic Counseling -
Additional Resource
Minnesota 2008 State Bills (Minnesota 2008 HF 1905)
This bill modifies the definition of genetic test under the Genetic Insurance Discrimination Act and adds a new section restricting the use of genetic information in individual and group life,…- state bill
- bill
- bill status died
- Minnesota
- health insurance nondiscrimination
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Grant Abstract
Culture and Family Interpretation of Genetic Disorders
The overall aim of this ethnographic and longitudinal project is to assess how parents from different cultural backgrounds who have a child or who are at risk for having a child with a genetic…- African American
- behavioral /social science research tag
- Belief
- caucasian American
- Clinical Research
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Additional Resource
Louisiana State Statute (Louisiana: LRS 22:1964)
It is an unfair method of competition and deceptive act and practice in the business of insurance to discriminate against an insured, enrollee, or beneficiary in the issuance, payment of benefits,…- state statute
- Louisiana
- health insurance nondiscrimination
- disability
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Publication
Ethically robust reproductive genetic carrier screening needs to measure outcomes that matter to patients
European Journal of Human Genetics