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Publication
Parents preferences for outcomes associated with childhood vaccinations
Pediatr Infec Dis Journal -
Publication
Victims of eugenic sterilisation in Utah: Cohort demographics and estimate of living survivors
Lancet Reg Health AmUniversity of Utah Center of Excellence in ELSI research (UCEER). Grant number(s): RM1HG009037 -
Additional Resource
Kentucky State Statute (Kentucky: KRS §304.12-085)
Individual or group health benefit plan or insurers may not (1) deny, cancel, or refuse to renew the benefits or coverage, or vary the premiums, terms, or conditions for the benefits or coverage, for…- state statute
- Kentucky
- health insurance nondiscrimination
- disability
- health benefit plan
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Additional Resource
California State Statute (California: Cal. Health and Safety Code §1374.7, Insurance Code §10123.3 et seq…)
Health care service plans, self-insured employee welfare benefit plans, and multiple employer welfare arrangements may not refuse to enroll any person, refuse to accept or renew a subscriber, charge…- state statute
- statute
- California
- genetic characteristics
- genetic disability
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Additional Resource
Montana 2013 State Bills (Montana 2013 HB 441)
Each group or individual medical expense, cancer, and blanket disability policy, certificate of insurance, and membership contract must provide minimum mammography examination coverage. The…- state bill
- bill
- bill status died
- Montana
- health insurance coverage
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Collection
Paying for Cures: The Ethics and Economics of Gene Therapies for Rare Diseases
Rare diseases, most of which have a genetic basis, collectively affect an estimated 300 million individuals worldwide and are associated with significant morbidity and mortality. Although less than…- gene therapy
- sickle cell disease
- health economics
- nusinersen
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Grant Abstract
Genetic Information and Life Insurance Underwriting
The proposed research will study whether there should be any limits placed on life insurers' use of predictive genetic information in risk classification or medical underwriting. The research…- behavioral /social science research tag
- Data Collection
- Ethics
- Gene Expression
- genetic carriers
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Video
ELSIcon2022 Paper: Why Do Patients Drop Out of Population-Based Screening for Hereditary Cancer Risk?
ELSIcon2022 • Paper • June 1, 2022 Catharine Wang, Kevin C. Cain, Elizabeth Swisher, Deborah J.Bowen, Susan Trinidad Identifying patients who have increased genetic risk for common…- Live
- Paper
- Uptake of genetic testing
- Genetic testing and screening