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Publication
Intentions to share exome sequencing results with family members: Exploring spousal beliefs and attitudes
Eur J Hum GenetClinical Sequencing Evidence-Generating Research (CSER) Consortium. -
Publication
Benefit sharing for human genomics research: Awareness and expectations of genomics researchers in sub-Saharan Africa
Ethics & Human Research -
Publication
Benefit sharing for human genomics research: Awareness and expectations of genomics researchers in sub‐Saharan Africa
Ethics & Human Research -
Publication
Conservation macrogenetics: Harnessing genetic data to meet conservation commitments
Trends in Genetics -
Grant Abstract
Assessing the Use and Understanding of Certificates of Confidentiality
Researchers and institutions are ethically and legally obligated to safeguard research participants' privacy and the confidentiality of their data. Indeed, the success of the research enterprise…- Certificate of Confidentiality
- confidentiality
- Counseling
- court
- Data
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Video
ELSIcon2022 Panel: Equity and Justice in Dementia Care: Perspectives on Ethical, Health, and Policy Implications of Tests and Treatments for Alzheimer's Disease and Related Dementias
ELSIcon2022 • Panel Session 13 • June 2, 2022 Hadley Stevens Smith, Emily Largent, Cheng Chen, Kathryn Phillips Advances in genetic and biomarker-based risk prediction, diagnosis, and treatment…- Live
- Panel
- Access to genetic screening and therapies
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Research Tool
Data Dictionary: CRiTICS - Video Coding
Case and colleagues developed an educational intervention (CRiTICS) for providers' communication of a positive prenatal genetic screening result. The data dictionary for this study outlines the… -
Publication
The responsibility to share: Sharing the responsibility
Genome ResearchDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Collection
Ethical, Legal, and Social Implications (ELSI) of DNA-based Technologies for Disaster Victim Identification (DVI)
As we mark the 20th anniversary of the attacks on the World Trade Center and Washington, D.C. that occurred on September 11, 2001, we reflect on the pain and loss of the events that shook the entire…- DNA-based technology
- Disaster victim identification (DVI)
- Identity sciences
- DNA identification
- natural disaster