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Publication
Intertwined interests in expanded prenatal genetic testing: The state’s role in facilitating equitable access
American Journal of Bioethics -
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Publication
Psychological adaptation to diagnostic genomic sequencing results: The role of hope fulfillment
Health PsycholClinical Sequencing Evidence-Generating Research (CSER) Consortium. Grant number(s): U01 HG006487–01, 1UL1TR001111 -
Publication
Societal preferences for the return of incidental findings from clinical genomic sequencing: A discrete-choice experiment
CMAJClinical Sequencing Evidence-Generating Research (CSER) Consortium. Grant number(s): U01 HG0006507-01 -
Publication
How should communities be meaningfully engaged (if at all) when setting priorities for biomedical research? Perspectives from the biomedical research community
BMC Medical EthicsBorthwick, Evertsz, and Pratt find support for community engagement in biomedical research priority-setting, but no consensus on what ethical purpose it should serve or how it should be done. -
In the Media
The UNITE Initiative: Charging Forward on the Road to Racial Equity in the Biomedical Workforce
NIH News |Marie A. Bernard- ethnic and racial diversity
- Justice
- National Institutes of Health (NIH)
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Publication
It's the patient
PharosDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
News
ELSI in Review • September 2022
About this listing ELSI in Review is a listing of recently published reviews of the literature on key ELSI topics curated by CERA staff. Our September 2022 set explores parent experiences with… -
Publication
Tackling structural injustices: On the entanglement of visibility and justice in emerging technologies
The American Journal of Bioethics