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Publication
HTA methodology and value frameworks for evaluation and policy making for cell and gene therapies
The European Journal of Health Economics -
Grant Abstract
Ethical, Legal and Social Issues for Precision Medicine and Infectious Disease
Precision medicine is an emerging approach for disease treatment and prevention that takes into account individual variability in genes, environment, and lifestyle for each person. The Precision…- Attention
- Bioethics
- burden of illness
- career development
- Chronic Disease
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Publication
Next generation sequencing: Forensic applications and policy considerations
WIREs Forensic Science -
Publication
Human germline and heritable genome editing: The global policy landscape
The CRISPR Journal -
Publication
Bridging the genomic data gap in Africa: Implications for global disease burdens
Global Health -
News
Developing Resources for DNA Testing at the Border: BorderDNA Working Group
Emerging technological advances and political shifts have expanded immigration-related DNA applications beyond relationship tests within a family for visa petitions. Several U.S. government programs…- genetic testing
- Immigration
- Data Collection
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Publication
An open source tool for game theoretic health data de-identification
AMIA Annual Synposium Proceedings ArchiveThe Center for Genetic Privacy and Identity in Community Settings (GetPreCiSe). Grant number(s): RM1HG009034 -
Publication
NIH pulls plug on ethics review
ScienceDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Rare diseases in Tanzania: A national call for action to address policy and urgent needs of individuals with rare diseases
Orphanet Journal of Rare Diseases -
Publication
Medicalizing risk: How experts and consumers manage uncertainty in genetic health testing
PLOS ONEMukherjee, Eby, Wang, and colleagues observe genomics conferences and analyze Reddit posts to understand how lay, direct-to-consumer (DTC) genetic test users and researchers conceptualize genetic…