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Publication
Size matters: How population size influences genotype–phenotype association studies in anonymized data
Journal of Biomedical Informatics -
Publication
Patients’ reactions to letters communicating collateral findings of pragmatic clinical trials: A national web-based survey
Journal of General Internal Medicine -
Publication
The SHARPn project on secondary use of Electronic Medical Record data: Progress, plans, and possibilities
AMIA Annu Symp Proc -
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Research Tool
Data Dictionary: Assessing the Financial Burden of Genetic Testing
Rothwell and colleagues surveyed patients to assess the financial burden of genetic testing. The data dictionary for this study outlines the structure, content, and variable definitions for the… -
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Publication
The ethics of benefit sharing
Clinical GeneticsDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Managed genetic care in a large HMO
HMO PracticeDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
What do the various principles of justice mean within the concept of benefit sharing?
Journal of Bioethical Inquiry