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News
ELSI in Review • March 2023
About this listing ELSI in Review is a listing of recently published reviews of the literature on key ELSI topics curated by CERA staff. Our March 2023 set explores the ethics of gene therapy,… -
Publication
Increasing access to individualized medicine: A matched-cohort study examining Latino participant experiences of genomic screening
Genetics in Medicine -
Additional Resource
Workshop Proceedings, Military Medical Ethics: Issues Regarding Dual Loyalties, the National Academies of Sciences, Engineering, and Medicine (NASEM) (2008)
This National Academies Press publication summarizes a one-day workshop, Military Medical Ethics: Issues Regarding Dual Loyalties, convened by the Institute of Medicine of the National Academies on…- NASEM
- ELSI
- report
- consensus study
- workshop proceeding
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Publication
Are DNA patents bad for medicine?
Health PolicyDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Video
ELSIcon2022 Panel: What Can Intersectionality Bring to ELSI?: Transforming Theory into Practice
ELSIcon2022 • Panel Session 8 • June 1, 2022 Daphne Martschenko, Lucas Matthews, Maya Sabatello, Krystal Tsosie In theory, the study of Ethical, Legal, and Social Implications (ELSI) of…- Live
- Panel
- Reflections on the ELSI field
- equity and justice in genetics
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Publication
Why the gene was (mis)placed at the center of American health policy
Hastings Center Report -
Additional Resource
Workshop Proceedings, Second International Summit on Human Genome Editing: Continuing the Global Discussion, the National Academies of Sciences, Engineering, and Medicine (NASEM) (2018)
This National Academies Press publication summarizes the proceedings of the Second International Summit on Human Genome Editing, convened on November 27-29, 2018 by the U.S. National Academy of…- NASEM
- ELSI
- report
- consensus study
- workshop proceeding
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Publication
"Use it or lose it" as an alternative approach to protect genetic privacy in personalized medicine
Urol OncolClinical Sequencing Evidence-Generating Research (CSER) Consortium -
Additional Resource
Consensus Study Report, On Being a Scientist: A Guide to Responsible Conduct in Research: Third Edition, the National Academies of Sciences, Engineering, and Medicine (NASEM) (2009)
This National Academy of Sciences, National Academy of Engineering, and Institute of Medicine publication describes professional standards for ethical scientific conduct. Topics include best…- NASEM
- ELSI
- report
- consensus study
- workshop proceeding
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Publication
Ethical preparedness in genomic medicine: How NHS clinical scientists navigate ethical issues
Journal of Medical Ethics