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Publication
Neglected ethical issues in biobank management: Results from a U.S. study
Life Sciences, Society and Policy -
Publication
Detecting the presence of an individual in phenotypic summary data
Proceedings of the American Medical Informatics Association Annual Fall Symposium (AMIA)The Center for Genetic Privacy and Identity in Community Settings (GetPreCiSe). Grant number(s): RM1HG009027 -
Research Tool
Data Dictionary: Pediatricians' Understanding of Children's Health Rights
This survey was administered to pediatricians' during pediatric grand rounds to assess understanding of children's health rights. The data dictionary for this study outlines the structure,… -
Publication
Hospitals should act now to notify patients about research use of their data and biospecimens
Nature Medicine -
Publication
A shared history of shame: Sweden's four-decade policy of forced sterilization and the eugenics movement in the United States
Indiana International and Comparative Law ReviewDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
News
ELSI Abroad: Spotlight on South Korea
In this seventh installment of the ELSI Abroad series, CERA spoke with Ilhak Lee, M.D., Ph.D., and Hannah Kim, M.D., Ph.D., about ELSI research in South Korea. Professor Lee and Professor Kim are… -
Publication
Attitudes of Costa Rican individuals towards donation of personal genetic data for research
Personalized Medicine -
Publication
Breaches in good regulatory practice -- the HFEA policy on compensated egg sharing for stem cell research
Clinical EthicsDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Who knows what, and when?: A survey of the privacy policies proffered by U.S. direct-to-consumer genetic testing companies
Cornell Journal of Law and Public PolicyThe Center for Genetic Privacy and Identity in Community Settings (GetPreCiSe). Grant number(s): RM1HG009022