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  • Publication

    Ethical aspects of molecular epidemiology of cancer

    Carcinogenesis
    Vahakangas, Kirsi
    Digital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National…

  • Publication

    Confronting the issues of therapeutic misconception enrollment decisions, and personal motives in genetic medicine-based clinical research studies for fatal disorders

    Human Gene Therapy
    Arkin, Lisa M., Sondhi, Dolan, Worgall, Stefan, Suh, Lily Hyon K., Hackett, Neil R., Kaminsky, Stephen M., Hosain, Syed A., Souweidane, Mark M., Kaplitt, Michael G., Dyke, Jonathan P., Heier, Linda A., Ballon, Douglas J., Shungu, Dikoma C., Wisniewski, Kry
    Digital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National…

  • Publication

    Stem cell research ethics: Consensus statement on emerging issues

    JOGC: Journal of Obstetrics and Gynaecology Canada
    Caulfield, Timothy, Ogbogu, Ubaka, Nelson, Erin, Einsiedel, Edna, Knoppers, Bartha, McDonald, Michael, Brunger, Fern, Downey, Robin, Fernando, Kanchana, Galipeau, Jacques, Geransar, Rose, Griener, Glenn, Grenier, Glenn, Hyun, Insoo, Isasi, Rosario, Kardel,
    Digital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National…

  • Publication

    Duty to disclose what? Querying the putative obligation to return research results to participants

    Journal of Medical Ethics
    Miller, F.A., Christensen, R., Giacomini, M., Robert, J.S.
    Digital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National…

  • Publication

    Ethical reflection on human gene therapy in the Chinese context

    International Journal of Bioethics
    Zhang, Xinqing
    Digital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National…

  • Publication

    Returning individual research results: Development of a cancer genetics education and risk communication protocol

    Journal of empirical research on human research ethics
    Returning individual research results: Development of a cancer genetics education and risk communication protocol
    Digital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National…

  • Additional Resource

    New York 2019 State Bills (New York 2019 A8169)

    Requires every personal information recipient to protect the security and integrity of all personal information in their custody from unauthorized access or unauthorized use. Places strict liability…
    • state bill
    • bill
    • bill status pending
    • New York
    • genetic privacy

  • Additional Resource

    New Hampshire 2019 State Bills (New Hampshire 2019 SB 262)

    The informational content, including DNA/RNA and genetic sequences, contained in or on abandoned personal material is the property of the individual to whom it pertains regardless of its abandonment…
    • state bill
    • bill
    • bill status died
    • New Hampshire

  • Additional Resource

    Maryland 2019 State Bills (Maryland 2019 SB 495 )

    A person who directly or indirectly advertises or solicits business for diagnostic laboratory tests or procedures is a covered entity under HIPAA and must make certain disclosures. The law does not…
    • state bill
    • bill
    • bill status enacted
    • Maryland
    • HIPAA

  • Additional Resource

    California 2011 State Bills (California 2011 SB 559)

    This bill, referred to as CalGINA, prohibits discrimination based on genetic information in several areas in addition to those addressed by existing law, including in housing, at certain business…
    • state bill
    • bill
    • California
    • genetic information
    • genetic discrimination