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Publication
Old challenges or new issues? Genetic health professionals’ experiences obtaining informed consent in diagnostic genomic sequencing
AJOB Empirical Bioethics -
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Grant Abstract
Returning Individual Genetic Research Results to Parents and Children
The mapping of the human genome has allowed researchers to discover new relationships between genotype and phenotype, and has provided the basis for genome-informed medical decision-making that will…- Adverse effects
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Grant Abstract
The Moana Project: The Connection Between Pacific Islanders and Genetics
PROJECT NARRATIVE The Moana Project is dedicated to fostering community engagement and dialogue about genetic research within the Pacific Islander community. Our objective is to facilitate the… -
Publication
Impact of gene patents and licensing practices on access to genetic testing for hearing loss. Peer-reviewed case study commissioned by the SACGHS
Genetics in MedicineDuke University Center for Public Genomics. Grant number(s): P50HG003391 -
Publication
Pediatric cancer genetics research and an evolving preventive ethics approach for return of results after death of the subject
J Law Med EthicsClinical Sequencing Evidence-Generating Research (CSER) Consortium. Grant number(s): 1U01HG006485, R21HG006594-01, 1-R01-CA154517