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Publication
Narratives in public deliberation: Empowering gene editing debate with storytelling
Hastings Center Report -
Grant Abstract
Organizing the HGI: Social Impact and Technology Design
This sociological study is a prospective field research project on the development of the human genome initiative during the first half of the 1990's. The study is examining how the genomics…- comprehensive medical planning
- Decision Making
- Ethics
- Genome
- health /scientific organization
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Publication
Lowering the burden of hereditary diseases in a traditional, inbred community: Ethical aspects of genetic research and its application
Science in ContextDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Waiver of individual patient consent in research: When do potential benefits to the community outweigh private rights?
Medical Journal of AustraliaDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Documentation of inherited disorders and mutation frequencies in the different religious communities in Israel in the Israeli National Genetic Database
Human MutationDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Grant Abstract
A Model for Inclusion of Minorities in Genetic Research
Autism is a complex lifelong neurodevelopmental and behavioral disorder that manifests in infancy or early childhood. Although the causes are still unknown, the data suggest that autism and Autism…- advocacy organizations
- Affect
- African American
- Architecture
- Ashkenazim
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Publication
Attitudes towards genetic screening for predisposition to colon cancer among cancer patients, their relatives and members of the community
Community GeneticsDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Video
Re-envisioning Translational Equity in Pediatric Gene Therapy Research
ELSIcon2024 • Paper • June 12, 2024 Authors: Speaker: Aaron Goldenberg, PhD, MPH (he/him/his) - Case Western Reserve University School of Medicine Over the last decade, the…- ELSIcon2024
- 6th ELSI Congress
- equity and justice in genetics
- Gene therapies and gene editing
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Publication
From community-based carrier programs to opportunistic carrier screening: How the objective of carrier screening was lost in translation
The American Journal of Bioethics