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Publication
Regulating reproductive genetics: A review of American bioethics commissions and comparison to the British Human Fertilisation and Embryology Authority
Columbia Science and Technology Law ReviewDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Research in human genetics: The tension between doing no harm and personal autonomy
Clinical GeneticsDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Ethical goals of community consultation in research
American Journal of Public HealthDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Criteria for pre-embryo research in South Africa: An analysis within the paradigm of respect for the pre-embryo
Medicine and LawDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
When research seems like clinical care: A qualitative study of the communication of individual cancer genetic research results
BMC Medical EthicsDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Authoritative regulation and the stem cell debate
BioethicsDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Additional Resource
Nebraska State Statute (Nebraska: NRS §71-551)
A physician or an individual to whom the physician has delegated authority to perform a selected act, task, or function may not order a predictive genetic test without prior written informed consent…- state statute
- Nebraska
- Newborn screening
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In the Media
What Is 23andMe Doing With Your DNA?
The New York Times |Kara Swisher- 23andMe
- biotechnology industry
- genomic data privacy
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In the Media
New York Lawmakers Want Limits on Collection of Kids’ DNA
Imprint News |Rachel Rippetoe- children and adolescent/pediatrics
- forensic dna data banking
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Additional Resource
Massachusetts State Statute (Massachusetts: MGL 175 §108H, 176A §3B, 176B §5B, 176G §24, 176I §4A )
A health maintenance organization, company, insurance broker, medical service corporation, non-profit hospital service corporation or preferred provider organization may not cancel, refuse to issue…- state statute
- Massachusetts
- health insurance nondiscrimination
- nondiscrimination
- genetic information