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Publication
Experience as knowledge: Disability, distillation and (reprogenetic) decision-making
Social Science & Medicine -
Video
ELSIcon2024: Proper Parents: Poverty, Disability, Race, and Reproductive Control after the Eugenics Era
ELSIcon2024 • Panel • June 10, 2024 Authors: Corresponding Author: Natalie Lira Panelist: Jim Tabery, PhD – University of Utah Panelist: Marie Kaniecki, MPH (she/her/hers) –…- ELSIcon2024
- 6th ELSI Congress
- disability
- equity and justice in genetics
- reproductive genetics
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Grant Abstract
Use of Genetic Information by Life, Long-term Care, and Disability Insurers: Exploring International Lessons, the Domestic Legal
This project employs multiple methods and a transdisciplinary approach to explore policy options for US federal and state governments seeking to address how life, long-term care, and disability…- Advocacy
- Affect
- Area
- Australia
- Case Study
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Publication
Newborn screening for developmental disabilities: Reframing presumptive benefit
Am J Public Health -
Publication
The disabled
Greenhaven PressDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Respecting persons with disabilities and preventing disability: Is there a conflict?
Oxford University PressDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Using ethnodrama to support parents in sense-making after prenatal or neonatal diagnosis of a child's disabling condition
J Appl Res Intellect DisabilUniversity of Utah Center of Excellence in ELSI research (UCEER). Grant number(s): RM1HG009037 -
Grant Abstract
GURU: Graduate and Undergraduate Researchers of UCEER
PROJECT NARRATIVE The purpose of this R25 Diversity Action Plan grant proposal is to create a program that will equip students with disabilities with mentoring, research, and curricular resources…- Academia
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- Advocate
- Affect
- Applications Grants