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Grant Abstract
Community Consultation as an Ethics Method
Over the past decade researchers, institutions and research sponsors have engaged in various forms of discourse with minority and indigenous populations in the US and abroad. These "community…- behavioral /social science research tag
- Clinical Research
- community health services
- data collection methodology /evaluation
- Ethics
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Publication
Operationalizing the CARE and FAIR Principles for Indigenous data futures
Scientific Data -
Video
ELSIcon2022 Panel: Engagement with Historically Marginalized Communities: Methods, Positionality and ELSI in Precision Medicine Research
ELSIcon2022 • Panel Session 12 • June 2, 2022 Kyle B. Brothers, Nanibaa' A. Garrison, Maya Sabatello, Amy Lemke The practice of community engaged research is grounded in ethical, practical,…- Live
- Panel
- Recruiting diverse participants to precision medicine research
- genomics research
- Biobanks
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Publication
Ethical and equitable digital health research: Ensuring self-determination in data governance for racialized communities
Cambridge Quarterly of Healthcare Ethics -
Publication
Data sharing and community-engaged research
ScienceSabatello and colleagues discuss areas of tension between the community-engaged research and data sharing movements including incentives and benefit sharing; group harm and power structures; and… -
Publication
Experience conducting a community-engaged student research project involving an underrepresented community: A reflective essay
Journal of Genetic Counseling -
Publication
How should communities be meaningfully engaged (if at all) when setting priorities for biomedical research? Perspectives from the biomedical research community
BMC Medical EthicsBorthwick, Evertsz, and Pratt find support for community engagement in biomedical research priority-setting, but no consensus on what ethical purpose it should serve or how it should be done. -
Publication
Pharmacogenetic research in partnership with American Indian and Alaska Native communities
Pharmacogenomics