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Grant Abstract
Incidental Enhancement: Addressing a Neglected Policy Issue in Human Genome Editing
PROJECT NARRATIVE This project is relevant to public health because achieving the health benefits of preventive gene editing research will depend on governance that is responsive to public concerns.…- Address
- Affect
- Agreement
- Animal Experimentation
- Animals
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Publication
Impact of integrating genomic data into the electronic health record on genetics care delivery
Genetics in Medicine -
Additional Resource
Center for Genetic Privacy and Identity in Community Settings (GetPreCiSe)
Ellen W. Clayton and Bradley Malin are Co-Directors of the Center for Genetic Privacy and Identity in Community Settings (GetPreCiSe), an NIH Center of Excellence in Ethics Research at Vanderbilt…- CEER
- genetic privacy
- genetic identity
- genomic data re-identification
- Policy
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Publication
Artificial Intelligence and assisted reproductive technologies: 2023. Ready for prime time? Or not.
Fertility and Sterility -
Publication
The All of Us Data and Research Center: Creating a secure, scalable, and sustainable ecosystem for biomedical research
Annual Review of Biomedical Data Science -
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Grant Abstract
Improving Child Health: The Role of Policymakers in Prevention and Treatment of Birth Defects
The National Conference of State Legislatures (NCSL) proposes to study the views of policymakers on the role of government in the prevention and treatment of birth defects and developmental…- congenital disorders
- developmental disease /disorder
- disease /disorder Prevention /control
- health care policy
- Information Dissemination
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Publication
Reconciling the biomedical data commons and the GDPR: Three lessons from the EUCAN ELSI collaboratory
European Journal of Human Genetics -
Publication
African aquaculture: Genetic resource and traditional knowledge access and benefit sharing measures
Reviews in Fisheries Science & Aquaculture