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In the Media
23andMe Breach Targeted Jewish and Chinese Customers, Lawsuit Says
The New York Times |The class-action suit said the genetic testing company failed to notify customers whose personal information was compiled into “curated” lists that were sold on the dark web.- 23andMe
- genetic data
- Biobanking and genomic databases
- breaches of confidentiality
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Additional Resource
New Mexico 2015 State Bills (New Mexico 2015 HB 369)
This bill amends the Genetic Information Privacy Act by adding an exemption for clinical laboratories with regard to consent requirements. A laboratory conducting an analysis or test of a specific…- state bill
- bill
- bill status enacted
- New Mexico
- genetic privacy
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Additional Resource
Nevada 2017 State Bills (Nevada 2017 AB 408)
An insurer, carrier or society (1) must offer or issue a health benefit plan or hospital or medical service contract to any person regardless of the health status of the person; and (2) may not…- state bill
- bill
- bill status vetoed
- Nevada
- health insurance coverage
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Additional Resource
Massachusetts 2017 State Bills (Massachusetts 2017 H2814)
Requires the department of consumer affairs and business to adopt regulations relative to any person that owns or licenses personal information about a resident of the commonwealth. Personal…- state bill
- bill
- bill status died
- Massachusetts
- genetic privacy
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Additional Resource
Maryland 2014 State Bills (Maryland 2014 SB 96)
Amends existing law pertaining to carriers, defined as insurers, nonprofit health service plans and health maintenance organizations, that offer wellness programs. Health factors are defined to…- state bill
- bill
- bill status enacted
- Maryland
- health insurance nondiscrimination
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Publication
Fifty years after the declaration: The United Nations' record on human rights
University Press of AmericaDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Pure selection: The ethics of preimplantation genetic diagnosis and choosing children without abortion
Acta Universitatis GothoburgensisDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Testimony on embryo research and related issues
National Catholic Bioethics QuarterlyDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Harmonizing the international regulation of embryonic stem cell research: Possibilities, promises and potential pitfalls
Medical Law InternationalDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Protecting egg donors and human embryos -- the failure of the South Korean Bioethics and Biosafety Act
Pacific Rim Law and Policy JournalDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National…