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Data Linkage Video for American Indian and Alaska Native Participants, All of Us Research Program
This 41 second video, created by the All of Us Research Program for American Indian and Alaska Native participants, explains that identifying information will be used to obtain data outside of the… -
Publication
Glad you asked: Participants' opinions of re-consent for dbGaP data submission
J Empir Res Hum Res Ethics -
Grant Abstract
Community-engaged Research Toward Precision Medicine with AIAN People
The overall goal of the proposed research is to advance policy approaches to support Precision Medicine research (PMR) with American Indian and Alaska Native (AIAN) people through culturally…- Alaska
- Alaska Native
- American Indians
- Area
- biomarker discovery
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Publication
Managing expectational language: Translational genetic professionals consider the clinical potential of next-generation sequencing technologies
New Genet SocClinical Sequencing Evidence-Generating Research (CSER) Consortium. Grant number(s): R01HG004500, P50HG003390 -
Publication
Reporting clinically relevant genetic variants unrelated to genomic test requests: A survey of Australian clinical laboratory policies and practices
Journal of Medical Genetics -
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Publication
Lessons from the commercialization of the Cohen-Boyer patents: The Stanford University licensing program
PIPRADuke University Center for Public Genomics. Grant number(s): P50HG003391 -
Video
ELSIcon2022 Flash: Revisiting the ethics of secondary findings in diagnostic genome-wide sequencing
ELSIcon2022 • Flash • May 27, 2022 Michael Mackley Secondary findings (SF) in genome-wide sequencing are variants unrelated to the indication for testing but associated with medically actionable…- return of results
- Genetic testing and screening
- Flash
- Pre-Recorded
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Publication
Ethical challenges in the management of health information
Jones and Bartlett PublishersDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Ethical challenges in the management of health information
Jones & Bartlett LearningDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National…