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Grant Abstract
Health Care Provider Responses to Receiving Unsolicited Genomic Results
PROJECT NARRATIVE Little is known about how health care providers (HCPs) will react to, and use, genomic information in patient care. The goal of this study is to understand how genomic information…- Address
- barrier to care
- base
- Behavior
- biobank
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Grant Abstract
Health Care Provider Responses to Receiving Unsolicited Genomic Results
Background: There is great interest in the implementation of genomic medicine, i.e., using genomic information to inform patient care. As a result, patients with medically actionable (preventable and…- barrier to care
- base
- Behavior
- biobank
- cancer therapy
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Grant Abstract
University of Utah Center of Excellence in ELSI research (UCEER)
PROJECT NARRATIVE The University of Utah Center for Excellence in ELSI research explores issues relevant to population testing and screening for genetic conditions in the healthcare of women and…- Address
- Advisory Committees
- Affect
- Award
- Cancer Center Planning Grant
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Grant Abstract
Digital Image Archive on the American Eugenics Movement
This project proposes to develop a searchable archive of images illustrating the American Eugenics Movement for use by students, educators, and others concerned with the ethical, legal, and social…- Archives
- behavioral /social science
- Behavioral Genetics
- bioimaging /biomedical imaging
- computer human interaction
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Publication
Ethical issues in human stem cell research. Volume II: Commissioned papers
The CommissionDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Grant Abstract
Ethical Legal and Social Implications Issues in Comparative Effectiveness Research
Two major forces in clinical medicine on the horizon are expected to change the paradigm of clinical care. One is personalized genomic medicine (PGM), which seeks to harness knowledge about the…- Alternative Therapies
- clinical care
- Clinical Medicine
- clinical practice
- Communities
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Grant Abstract
Disability, diversity and trust in precision medicine research: stakeholdersengagement
Project Narrative Studies suggest that distrust is a major barrier for participation of minorities in Precision Medicine Research (PMR), though no study has examined the sources of (dis)trust and…- Adult
- Affect
- African American
- Alaska Native
- American Indians
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Grant Abstract
Disability, diversity and trust in precision medicine research: stakeholders engagement
Project Narrative Studies suggest that distrust is a major barrier for participation of minorities in Precision Medicine Research (PMR), though no study has examined the sources of (dis)trust and…- Adult
- Affect
- African American
- Alaska Native
- American Indians
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Grant Abstract
Expanded Newborn Screening for Metabolic Disorders
The aims of this study are to: - compare newborn identification of biochemical genetic disorders by expanded screening with clinical identification in term of the interaction between the parents and…- behavioral /social science research tag
- child rearing
- Clinical Research
- data collection methodology /evaluation
- developmental psychology
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Grant Abstract
Parent Education on DNA Testing in the Newborn Screen
This project will develop video based educational materials to inform new parents about implications of DNA testing for disorders evaluated in the newborn screen, using Cystic Fibrosis (CF) Newborn…- Anxiety
- behavioral /social science research tag
- Clinical Research
- Cystic Fibrosis
- data collection methodology /evaluation