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Publication
The motivations and methods behind sharing a pediatric Prader–Willi syndrome diagnosis
American Journal of Medical Genetics Part A -
Research Tool
Data Dictionary: UCEER - SDSU Mapping the Genetics Communication Circuit
This project brought together health communication experts with diverse areas of expertise to investigate connections among clinical encounters, family decision making conversations, and information… -
Grant Abstract
BRCA1/2 Testing: Patient Uptake and Treatment Choices
This project is designed to examine factors associated with the uptake of BRCA1/2 genetic testing and patients' medical management choices after learning their test results. The project will…- behavioral /social science research tag
- brca gene
- breast neoplasm /cancer diagnosis
- breast neoplasms
- Clinical Research
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Publication
Structuring US innovation policy: Creating a White House Office of Innovation Policy
The Information Technology & Innovation FoundationDuke University Center for Public Genomics. Grant number(s): P50HG003391 -
Additional Resource
The Duke Center for the Study of Public Genomics
Robert Cook-Deegan was the Principal Investigator of The Duke Center for the Study of Public Genomics. This center assembled a team to gather and analyze information about the role of publication,…- CEER
- Duke University Center for Public Genomics
- Robert Cook-Deegan
- Intellectual Property
- Open science
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Publication
Me and my data
Historical Studies in the Natural SciencesThe Center for Genetic Privacy and Identity in Community Settings (GetPreCiSe). Grant number(s): RM1HG009023 -
Publication
Patient-reported anticipated barriers and benefits to sharing cancer genetic risk information with family members
European Journal of Human Genetics -
Publication
Genetic and genomic researchers' perspectives on biological sample sharing in collaborative research in Uganda: A qualitative study
Journal of Empirical Research on Human Research Ethics -
Publication
Promoting and managing genome innovation
Risk: Health, Safety & EnvironmentDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National…