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Publication
Ethical issues in clinical practice: Cases and analyses
Seminars in Pediatric NeurologyDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Additional Resource
New Mexico State Statute (New Mexico: NMSA §24-21-1 et seq.)
The statutes contain provisions on the acquisition, collection, retention, transmission or use of genetic information. Consent requirements provide an exemption (1) if DNA, genetic information or…- state statute
- New Mexico
- employment nondiscrimination
- health insurance nondiscrimination
- genetic privacy
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Grant Abstract
Returning Exome and Whole Genome Results To Underserved Minority Populations
Exome sequencing (ES) and whole genome sequencing (WGS) are transformative new tools for discovery of genetic risk factors for both rare and common diseases and offer the potential of personalized…- Adult
- African American
- American
- Anthropology
- Anxiety
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Grant Abstract
Polygenic Embryo Screening: Towards Informed Decision-Making
PROJECT NARRATIVE Recent progress in complex trait genetics, coupled with the technical ability to generate accurate genome-wide genotypes from single-cell input, has made it possible to genetically…- Alleles
- Aneuploidy
- Assisted Reproductive Technology
- Attitude
- base
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Grant Abstract
Health Care Provider Responses to Receiving Unsolicited Genomic Results
PROJECT NARRATIVE Little is known about how health care providers (HCPs) will react to, and use, genomic information in patient care. The goal of this study is to understand how genomic information…- Address
- barrier to care
- base
- Behavior
- biobank
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Grant Abstract
Health Care Provider Responses to Receiving Unsolicited Genomic Results
Background: There is great interest in the implementation of genomic medicine, i.e., using genomic information to inform patient care. As a result, patients with medically actionable (preventable and…- barrier to care
- base
- Behavior
- biobank
- cancer therapy
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Grant Abstract
University of Utah Center of Excellence in ELSI research (UCEER)
PROJECT NARRATIVE The University of Utah Center for Excellence in ELSI research explores issues relevant to population testing and screening for genetic conditions in the healthcare of women and…- Address
- Advisory Committees
- Affect
- Award
- Cancer Center Planning Grant
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Grant Abstract
Digital Image Archive on the American Eugenics Movement
This project proposes to develop a searchable archive of images illustrating the American Eugenics Movement for use by students, educators, and others concerned with the ethical, legal, and social…- Archives
- behavioral /social science
- Behavioral Genetics
- bioimaging /biomedical imaging
- computer human interaction
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Publication
Ethical issues in human stem cell research. Volume II: Commissioned papers
The CommissionDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Grant Abstract
Ethical Legal and Social Implications Issues in Comparative Effectiveness Research
Two major forces in clinical medicine on the horizon are expected to change the paradigm of clinical care. One is personalized genomic medicine (PGM), which seeks to harness knowledge about the…- Alternative Therapies
- clinical care
- Clinical Medicine
- clinical practice
- Communities