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Publication
The informed consent aftermath of the genetic revolution. An Italian example of implementation
Medicine, Health Care and PhilosophyDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Video
ELSIcon2022 Flash: Genetic Attribution and Felt Stigma in People with Epilepsy
ELSIcon2022 • Flash • May 27, 2022 Ruth Ottman, John B. Wetmore Among people with epilepsy, felt stigma remains common and significantly impacts quality of life. In our previous study of families…- Stigma and discrimination
- Genetic testing and screening
- Flash
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Publication
The examination of genetic characteristics since the adoption of the French law on bioethics
Medicine and Law: World Association for Medical LawDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
The ugly curve -- genetic screening into the 21st century
University of Iceland PressDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Video
ELSIcon2022 Paper: The Ethical, Legal, and Social Implications of Stroke Genomic and Biobanking Research in Sub-Saharan Africa: Community Member Perspectives and Factors for Consideration
ELSIcon2022 • Paper • June 2, 2022 Michelle Nichols, Arti Singh, Olorunyomi Olorunsogbon, Ezinne Uvere, Mayowa Ogunronbi, Sylvia Melikam, Joshua Akinyemi, Kolawole Wahab, Albert Alpalu, Fred S…- Live
- Paper
- Attitudes about sharing biological samples and health data
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Publication
Acculturation in women with mental retardation and its impact on genetic counseling
Journal of Genetic CounselingDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
University-industry relationships in genetic research: Potential opportunities and pitfalls
Accountability in ResearchDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Unnatural selection: Nontherapeutic preimplantation genetic screening and proposed regulation
UCLA Law ReviewDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Adherence to published ethical guidelines by the UK genetics research community
Nature GeneticsDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Assessment of the effectiveness of genetic counseling by telephone compared to a clinic visit
Journal of Genetic CounselingDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National…