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Publication
The commercialization of human genetics in Canada: An overview of policy and legal issues
Ed. Yvon BlaisDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Spinocerebellar ataxia: Patient and health professional perspectives on whether and how patents affect access to clinical genetic testing. Peer-reviewed case study commissioned by the SACGHS
Genetics in MedicineDuke University Center for Public Genomics. Grant number(s): P50HG003391 -
Publication
Designer children: Reconciling genetic technology, feminism, and Christian faith
Pilgrim PressDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Collection
Realizing the Self-Determination Goals of Indigenous People in Genetics Research
Self-determination and tribal sovereignty are core concepts in the lives and histories of Indigenous Peoples. Within the United States, the peoples of the American Indian and Alaska Native tribes are…- Indigenous Peoples
- Genetics Research
- data sovereignty
- Indigenous Communities
- Community Engagement
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Publication
Genetic resources, biotechnology and human rights: The international legal framework
Hart PublishingDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Grant Abstract
Parent Communication of BRCA1/2 Test Results to Children
One of the primary motivations for parents to participate in BRCAI/2 testing is to find out about their minor children's risk of developing cancer. However, parents often report feeling…- adolescence (12-20)
- behavior prediction
- behavioral /social science research tag
- behavioral medicine
- brca gene
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Research Tool
The Public Understanding and Attitudes towards Genetics and Genomics (PUGGS) Questionnaire
Carver and colleagues developed the Public Understanding and Attitudes towards Genetics and Genomics (PUGGS) questionnaire to assess college students' knowledge of genetics, including gene-… -
Publication
Controlling bodies and creating monsters: Popular perceptions of genetic modifications
Cambridge University PressDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Grant Abstract
Programs for the Training and Advancement of the Next GENeration of Native Researchers in Genetics, Ethics and Society
The lack of American Indian and Alaska Native professionals in genomic sciences today highlights the tremendous need for effective training and research programs to prepare the next generation of…- academic program
- Achievement
- Address
- Affect
- Alaska Native
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Grant Abstract
Technology and Social Change: The Impact of Genetic Forecasting on Attitudes and Values
New developments in biotechnology, such as the ability to identify the genetic basis of many single gene disorders, and the progress in identifying the genetic basis for more complex disorders have…