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Additional Resource
Michigan 2013 State Bills (Michigan 2013 SB 568)
This bill requires the Department of Community Health to develop a model written, informed consent form for genetic testing. Health care professionals must have test subjects complete the form prior…- state bill
- bill
- bill status died
- Michigan
- genetic privacy
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Research Tool
Perceived Caregiving Interactions and Behaviors: Malfeasance, Nonfeasance, and Uplift Scales
The Perceived Caregiving Interactions and Behaviors: Malfeasance, Nonfeasance, Uplift Scales are used to examine whether levels of nonfeasance, malfeasance, and uplift are associated with the… -
Additional Resource
Consensus Study Report, Integrity in Scientific Research: Creating an Environment That Promotes Responsible Conduct, the National Academies of Sciences, Engineering, and Medicine (NASEM) (2002)
This National Academies Press publication documents the evidence-based consensus of a committee of experts on ethics in the scientific community. It outlines the findings, conclusions, and…- NASEM
- ELSI
- report
- consensus study
- workshop proceeding
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Publication
Empowering human research ethics committees to review genomics applications: Evaluating the utility of a custom online education resource
European Journal of Human Genetics -
Publication
The socio-exposome: Advancing exposure science and environmental justice in a postgenomic era
Environ Sociol -
Publication
Public participation in human genome editing research governance: What do scientists think?
Journal of Community Genetics -
News
Will the benefits of genomics research reach “All of Us”?
One approach to identifying new potential drug targets, Dr. Keolu Fox, a human geneticist in the Indigenous Futures Lab at the University of California, San Diego claims, is adding genetic… -
Grant Abstract
Informed Consent and Data Access Issues in State-based Biobanks
The ethical, legal, and social issues (ELSI) underlying the development and implementation of state-sponsored birth cohort studies and their accompanying biobanks are complex and potentially volatile…- Adult
- Affect
- Anxiety
- Area
- Attitude
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Publication
A vision for empirical ELSI along the R&D pipeline
AJOB Empirical BioethicsRajagopalan, Cakici, and Bloss envision a future in which empirical ELSI research is deployed early and continuously to align the goals of publicly funded science with local, public interests.