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Publication
Bankruptcy, genetic information, and privacy - Selling personal information
New England Journal of Medicineby Sara Gerke, Melissa B. Jacoby, & I. Glenn Cohen -
Additional Resource
Legal, Ethical, & Social Issues in Public Health Genetics Syllabus
This core course offered by the Institute for Public Health Genetics provides an introduction to the ethical, legal, social, and policy issues arising as genetic or genomic knowledge and technologies…- syllabus
- Newborn screening
- Eugenics
- Polygenic risk scores
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Publication
Sequenom v. Ariosa - The death of a genetic testing patent
N Engl J MedDuke University Center for Public Genomics. Grant number(s): P50HG003391 -
Publication
Sequenom v. Ariosa: The death of a genetic testing patent
New England Journal of MedicineDuke University Center for Public Genomics. Grant number(s): P50HG003391 -
Research Tool
Codebook: UCEER - SDSU Mapping the Genetics Communication Circuit
This project brought together health communication experts with diverse areas of expertise to investigate connections among clinical encounters, family decision making conversations, and information… -
Publication
Ethical implications of including children in a large biobank for genetic-epidemiologic research: A qualitative study of public opinion
Am J Med Genet C Semin Med Genet -
Collection
The Disability Rights Critique of Technologies that Eliminate Human Genetic Variation
The development and use of an expanding range of medical technologies that yield genetic information about embryos and fetuses has raised ethical questions about whether and how this increasingly… -