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Publication
NIH ponders repository for embryonic stem cells
NatureDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
For Congress and NIH, headaches ahead on stem cells
ScienceDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
The PRIMED Consortium: Reducing disparities in polygenic risk assessment
American Journal of Human Genetics -
Research Tool
Data Dictionary: Assessment of the Reading of the Informed Consent Play
Rothwell and colleagues assessed the short-term impact of the play "Informed Consent" by Deborah Zoe Laufer (a fictionalized look at the controversy over specimens collected from the… -
Publication
Cascade testing for hereditary cancer in Singapore: How population genomics help guide clinical policy
Familial Cancer -
Video
ELSIcon2022 Paper: Disrupting the status quo: a new model for benefit sharing in genomics research, a case study from South Africa
ELSIcon2022 • Paper • June 2, 2022 Erin Burke, Michèle Ramsay, June Fabian Genetics researchers have earned the label “extractive biocolonialists” because they collect samples and fail to…- Live
- Paper
- Recruiting diverse participants to precision medicine research
- genomics research
- Biobanks
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Publication
Reanalysis of genomic data in rare disease: Current practice and attitudes among Australian clinical and laboratory genetics services
European Journal of Human Geneticsby Stephanie Best, Zoe Fehlberg, Christopher Richards, Michael C. J Quinn, Sebastian Lunke, Amanda B. Spurdle, Karin S Kassahn, Chirag Patel, Danya F. Vears, Ilias Goranitis, Fiona Lynch, Alan… -
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Publication
Population genetics and benefit sharing
Community GeneticsDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National…