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ELSIcon2022 Paper: Interrogating the Value of Return: Stakeholders’ Perspectives on Return of Results in Biomedical Research
ELSIcon2022 • Paper • June 1, 2022 Caitlin McMahon, Nicole Foti, Mel Jeske, William Britton, Janet Shim, and Sandra Soo-Jin Lee on behalf of Ethics of Inclusion Study Team Over the last decade…- Live
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- Return of Results
- precision medicine
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Publication
Rigorous and systematic qualitative data analysis in biological anthropology
Am J Biol Anthropol. -
Publication
Stakeholder perspectives on ethical and trustworthy voice AI in health care
Digital Health -
Publication
Patient priorities for fulfilling the principle of respect in research: Findings from a modified Delphi study
BMC Medical EthicsParticipants in this study by Kraft, Duenas, and Shah said informed consent and interpersonal interactions were most important to their experience of respect in the research context. -
Publication
The Human Genome Organisation (HUGO) and a vision for ecogenomics: The Ecological Genome Project
Human Genomics -
Publication
Whole exome sequencing in South Africa: Stakeholder views on return of individual research results and incidental findings
Frontiers in Genetics -
Publication
Considerations of autonomy in guiding decisions around the feedback of individual genetic research results from genomics research: Expectations of and preferences from researchers in Botswana
Global Health, Epidemiology and Genomics