Skip to main content

The topics page enables quick access to all resource types on
the platform, organized by relevance to your topic.

81 - 90 of 7195 Topics

  • Publication

    Exploring pathways to trust: A tribal perspective on data sharing

    Genetics in medicine: official journal of the American College of Medical Genetics
    James, Rosalina, Tsosie, Rebecca, Sahota, Puneet, Parker, Myra, Dillard, Denise, Sylvester, Ileen, Lewis, John, Klejka, Joseph, Muzquiz, LeAnne, Olsen, Polly, Whitener, Ron, Burke, Wylie, Kiana Group
  • Grant Abstract

    iCONCUR: informed CONsent for Clinical data and biosample Use for Research

    Being transparent about the use of data collected during clinical care is important to establish trust relationships between patients and researchers. We propose to develop a system to elicit patient…
  • Publication

    Sharing by design: Data and decentralized commons

    Science
    Contreras, Jorge L, Reichman, Jerome H.
    Duke University Center for Public Genomics. Grant number(s): P50HG003391
  • Publication

    Data sharing to advance gene-targeted therapies in rare diseases

    American Journal of Medical Genetics Part C: Seminars in Medical Genetics
    Julie Lekstrom-Himes, Erika F. Augustine, Amy Brower, Thomas Defay, Richard S. Finkel, Amy L. McGuire, Mark W. Skinner, Timothy W. Yu
  • Publication

    Policy for sharing data obtained in NIH supported or conducted genome-wide association studies (GWAS)

    Federal Register
    National Institutes for Health
    Digital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National…
  • Publication

    Risk, trust, and altruism in genetic data sharing

    Journal of Public Economic Theory
    Zeeshan Samad, Myrna Wooders, Bradley Malin, Yevgeniy Vorobeychik
    The Center for Genetic Privacy and Identity in Community Settings (GetPreCiSe). Grant number(s): RM1HG008991
  • Publication

    Indigenous data sovereignties and data sharing in biological anthropology

    American Journal of Biological Anthropology
    Tsosie, Krystal S., Yracheta, Joseph M., Kolopenuk, Jessica, Smith, Rick W. A.
  • Publication

    Examining the power of the social imaginary through competing narratives of data ownership in health research

    Journal of Law and the Biosciences
    Sorbie, Annie, Gueddana, Wifak, Laurie, Graeme, Townend, David
    Sorbie and colleagues explore whether notions of ownership impact the sharing of health-related data.
  • Publication

    GA4GH: International policies and standards for data sharing across genomic research and healthcare

    Cell Genomics
    Rehm, Heidi L., Page, Angela J.H., Smith, Lindsay, Adams, Jeremy B., Alterovitz, Gil, Babb, Lawrence J., Barkley, Maxmillian P., Baudis, Michael, Beauvais, Michael J.S., Beck, Tim, Beckmann, Jacques S., Beltran, Sergi, Bernick, David, Bernier, Alexander, Bonfield, James K., Boughtwood, Tiffany F., Bourque, Guillaume, Bowers, Sarion R., Brookes, Anthony J., Brudno, Michael, Brush, Matthew H., Bujold, David, Burdett, Tony, Buske, Orion J., Cabili, Moran N., Cameron, Daniel L., Carroll, Robert J., Casas-Silva, Esmeralda, Chakravarty, Debyani, Chaudhari, Bimal P., Chen, Shu Hui, Cherry, J. Michael, Chung, Justina, Cline, Melissa, Clissold, Hayley L., Cook-Deegan, Robert M., Courtot, Mélanie, Cunningham, Fiona, Cupak, Miro, Davies, Robert M., Denisko, Danielle, Doerr, Megan J., Dolman, Lena I., Dove, Edward S., Dursi, L. Jonathan, Dyke, Stephanie O.M., Eddy, James A., Eilbeck, Karen, Ellrott, Kyle P., Fairley, Susan, Fakhro, Khalid A., Firth, Helen V., Fitzsimons, Michael S., Fiume, Marc, Flicek, Paul, Fore, Ian M., Freeberg, Mallory A., Freimuth, Robert R., Fromont, Lauren A., Fuerth, Jonathan, Gaff, Clara L., Gan, Weiniu, Ghanaim, Elena M., Glazer, David, Green, Robert C., Griffith, Malachi, Griffith, Obi L., Grossman, Robert L., Groza, Tudor, Auvil, Jaime M. Guidry, Guigó, Roderic, Gupta, Dipayan, Haendel, Melissa A., Hamosh, Ada, Hansen, David P., Hart, Reece K., Hartley, Dean Mitchell, Haussler, David, Hendricks-Sturrup, Rachele M., Ho, Calvin W.L., Hobb, Ashley E., Hoffman, Michael M., Hofmann, Oliver M., Holub, Petr, Hsu, Jacob Shujui, Hubaux, Jean-Pierre, Hunt, Sarah E., Husami, Ammar, Jacobsen, Julius O., Jamuar, Saumya S., Janes, Elizabeth L., Francis Jeanson,, Aina Jené,, Amber L. Johns,, Yann Joly,, Steven J.M. Jones,, Alexander Kanitz,, Kato, Kazuto, Keane, Thomas M., Kekesi-Lafrance, Kristina, Kelleher, Jerome, Giselle Kerry,, Seik-Soon Khor,, Bartha M. Knoppers,, Melissa A. Konopko,, Kenjiro Kosaki,, Kuba, Martin, Lawson, Jonathan, Leinonen, Rasko, Li, Stephanie, Lin, Michael F., Linden, Mikael, Liu, Xianglin, Liyanage, Isuru Udara, Lopez, Javier, Lucassen, Anneke M., Lukowski, Michael, Mann, Alice L., Marshall, John, Mattioni, Michele, Metke-Jimenez, Alejandro, Middleton, Anna, Milne, Richard J., Molnár-Gábor, Fruzsina, Mulder, Nicola, Munoz-Torres, Monica C., Nag, Rishi, Nakagawa, Hidewaki, Nasir, Jamal, Navarro, Arcadi, Nelson, Tristan H., Niewielska, Ania, Nisselle, Amy, Niu, Jeffrey, Nyrönen, Tommi H., O’Connor, Brian D., Oesterle, Sabine, Ogishima, Soichi, Wang, Vivian Ota, Paglione, Laura A.D., Palumbo, Emilio, Parkinson, Helen E., Philippakis, Anthony A., Pizarro, Angel D., Prlic, Andreas, Rambla, Jordi, Rendon, Augusto, Rider, Renee A., Robinson, Peter N., Rodarmer, Kurt W., Rodriguez, Laura Lyman, Rubin, Alan F., Rueda, Manuel, Rushton, Gregory A., Ryan, Rosalyn S., Saunders, Gary I., Schuilenburg, Helen, Schwede, Torsten, Scollen, Serena, Senf, Alexander, Sheffield, Nathan C., Skantharajah, Neerjah, Smith, Albert V., Sofia, Heidi J., Spalding, Dylan, Spurdle, Amanda B., Stark, Zornitza, Stein, Lincoln D., Suematsu, Makoto, Tan, Patrick, Tedds, Jonathan A., Thomson, Alastair A., Thorogood, Adrian, Tickle, Timothy L., Tokunaga, Katsushi, Törnroos, Juha, Torrents, David, Upchurch, Sean, Valencia, Alfonso, Guimera, Roman Valls, Vamathevan, Jessica, Varma, Susheel, Vears, Danya F., Viner, Coby, Voisin, Craig, Wagner, Alex H., Wallace, Susan E., Walsh, Brian P., Williams, Marc S., Winkler, Eva C., Wold, Barbara J., Wood, Grant M., Woolley, J. Patrick, Yamasaki, Chisato, Yates, Andrew D., Yung, Christina K., Zass, Lyndon J., Zaytseva, Ksenia, Zhang, Junjun, Goodhand, Peter, North, Kathryn, Birney, Ewan