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Publication
Controlling my genome with my smartphone: First clinical experiences of the PROMISE system
Clinical Research in Cardiology -
Publication
Most people share genetic test results with relatives even if the findings are normal: Family communication in a diverse population
Genetics in Medicine -
Research Tool
Health Record Video for American Indian and Alaska Native Participants, All of Us Research Program
This 50 second video explains to American Indian and Alaska Native participants the process for sharing health records with the All of Us Research Program (All of Us). All of Us is a health research… -
Video
Exploring Difference in the Biology Classroom: Engaging with Genetic Disability and Difference
Date: March 8 2023, 3-4 pm PT / 6-7 pm ET Language in biology and medicine can frame disability as a deviation from what is normal, acceptable, and welcome - a framework that can extend…- Continuing Education
- disability
- biology education
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News
ELSI Journal Club Resources - March 28, 2025
Session’s Featured Paper: Opportunistic genomic screening has clinical utility: An interventional cohort study Date and time: Friday, March 28, 2025 | 12pm ET US / 9am PT US Featured Author:… -
Research Tool
Health Record Video for American Indian and Alaska Native Participants, All of Us Research Program (Spanish Version)
This 50 second video explains to American Indian and Alaska Native participants the process for sharing health records with the All of Us Research Program (All of Us). All of Us is a health research… -
Publication
Managing re-identification risks while providing access to the All of Us research program
Journal of the American Medical Informatics Association -
Research Tool
Inteview Guide: Knowledge and Attitudes about Privacy and Secondary Data Use among African-Americans Using Direct-to-Consumer Genetic Testing
Ziegler and colleagues developed this semi-structured, qualitative, interview guide to elicit perspectives from Black/African-American participants on direct-to-consumer genetic testing. Topics…