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Publication
Precision medicine testing and disparities in health care for individuals with non-small cell lung cancer: A narrative review
Oncology Nursing Forum -
Publication
A systematic review of perceived risks, psychological and behavioral impacts of genetic testing
Genetics in MedicineDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Additional Resource
Connecticut State Statute (Connecticut CGA 19a §53)
The Health Commissioner must review and approve research proposals to be conducted using personally identifiable information in the newborn screening system or requiring contact with affected…- state statute
- statute
- Connecticut
- health commissioner
- Newborn screening
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Publication
Experiences among women with positive prenatal expanded carrier screening results
J Genet CounsUniversity of Utah Center of Excellence in ELSI research (UCEER). Grant number(s): RM1HG009037 -
Publication
Comparison of video, app, and standard consent processes on decision-making for biospecimen research: A randomized controlled trial
J Empir Res Hum Res EthicsUniversity of Utah Center of Excellence in ELSI research (UCEER). Grant number(s): RM1HG009037 -
Publication
Cost-effectiveness of nusinersen and universal newborn screening for spinal muscular atrophy
J PediatrUniversity of Utah Center of Excellence in ELSI research (UCEER). Grant number(s): RM1HG009037 -
Publication
Investigation of interest in and timing preference for cancer predisposition testing and expanded carrier screening among women of reproductive age
PEC InnovUniversity of Utah Center of Excellence in ELSI research (UCEER). Grant number(s): RM1HG009037 -
Publication
Creating a postmortem examination decision aid: Suggestions from bereaved parents of a stillborn
Patient Educ CounsUniversity of Utah Center of Excellence in ELSI research (UCEER). Grant number(s): RM1HG009037 -
Publication
COVID-19, senetics, and risk: Content analysis of Facebook posts early in the coronavirus pandemic
Health CommunUniversity of Utah Center of Excellence in ELSI research (UCEER). Grant number(s): RM1HG009037