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Publication
Genetic counselor roles in the undiagnosed diseases network research study: Clinical care, collaboration, and curation
Journal of Genetic Counseling -
Publication
Stewardship of patient genomic data: A policy statement of the American College of Medical Genetics and Genomics (ACMG)
Genetics in Medicine -
Research Tool
Manual for Deliberative Focus Group Discussions (dFGDs) on Feedback of Individual Findings in Genomic Research among Lay Individuals who have Participated in Genomics Research
The Manual for Deliberative Focus Group Discussions (dFGDs) on Feedback of Individual Findings in Genomic Research was originally developed for use among adults and adolescents enrolled in genomics… -
Publication
Ethical and moral perspectives of individuals who considered/used preimplantation (embryo) genetic testing
Journal of Genetic Counseling -
Publication
An analysis of the impact of annual cancer genetic testing guideline updates on a past patient population
Journal of Genetic Counseling -
Publication
Patient-reported outcomes and experiences with population genetic testing offered through a primary care network
Genetic Testing and Molecular Biomarkers -
Grant Abstract
The Human Genome Project: a Public Forum
This conference was a collaboration of the Mid-Atlantic Regional Human Genetics Network (MARHGN) and the Alliance of Genetic Support Groups. Represented groups included consumers, genetics and other… -
Additional Resource
Alabama 2015 State Bills (Alabama 2015 HB 564)
This bill prohibits state agencies, district boards of education, or pre K-12 educational institutions from administering any student survey, assessment, analysis, evaluation, or similar instrument…- solicit
- biometric records
- survey
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- DNA sequencing
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Publication
Ciencia, Genética, y ¿Desinformación?: A content analysis of genetic testing coverage from US Spanish-language news media
Journal of Genetic Counselingby Daniel Chavez-Yenter, Avery Holton, Alexis S. Vega, Ginger Zamora, and Kimberly A. Kaphingst