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Fair Access and Equity of Individualized Interventions for Ultrarare Genetic Conditions
This ELSI Friday Forum took place on September 8, 2023. Since application of the first individualized therapy in 2019, development of these bespoke treatments has expanded rapidly. Individualized…- Ultrarare Diseases
- N-of-1
- Individualized Therapies
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Publication
Religious belief, perceptions of human suffering, and support for reproductive genetic technology
Journal of Health Politics, Policy and LawDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Future animal: Environmental and animal welfare perspectives on the genetic engineering of animals
CQ:Cambridge Quarterly of Healthcare EthicsDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Implications of correlations between skin color and genetic ancestry for biomedical research
Nature GeneticsDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Effects of implicit racial bias and standardized patient race on genetic counseling students' patient-centered communication
Health Communication -
Publication
A study on the ethical, legal, and social aspects of the Chinese genetic database in Taiwan
University of Iceland PressDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Democratic rhetoric and genetic engineering: Who owns the human gene pool?
PraegerDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
PGD patients' and providers' attitudes to the use and regulation of preimplantation genetic diagnosis
Reproductive BioMedicine OnlineDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Choosing a child's future? Reproductive decision-making and preimplantation genetic diagnosis
AshgateDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National…