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Publication
Barriers and facilitators to genetic testing for breast and ovarian cancer amongst Black African women in Luton (UK)
Journal of Genetic Counseling -
Publication
Evaluation of CTRL: A web application for dynamic consent and engagement with individuals involved in a cardiovascular genetic disorders cohort
European Journal of Human Genetics -
Publication
Identifying aspects of public attitudes toward whole genome sequencing to inform the integration of genomics into care
Public Health Genomics -
Research Tool
Manual for Deliberative Focus Group Discussions (dFGDs) on Feedback of Individual Findings in Genomic Research among Lay Individuals who have Participated in Genomics Research
The Manual for Deliberative Focus Group Discussions (dFGDs) on Feedback of Individual Findings in Genomic Research was originally developed for use among adults and adolescents enrolled in genomics… -
Publication
Genetic counselor roles in the undiagnosed diseases network research study: Clinical care, collaboration, and curation
Journal of Genetic Counseling -
Publication
Stewardship of patient genomic data: A policy statement of the American College of Medical Genetics and Genomics (ACMG)
Genetics in Medicine -
Publication
An analysis of the impact of annual cancer genetic testing guideline updates on a past patient population
Journal of Genetic Counseling -
Publication
Ethical and moral perspectives of individuals who considered/used preimplantation (embryo) genetic testing
Journal of Genetic Counseling -
Grant Abstract
The Human Genome Project: a Public Forum
This conference was a collaboration of the Mid-Atlantic Regional Human Genetics Network (MARHGN) and the Alliance of Genetic Support Groups. Represented groups included consumers, genetics and other… -
Publication
Patient-reported outcomes and experiences with population genetic testing offered through a primary care network
Genetic Testing and Molecular Biomarkers